The chair of the council sits on the NDG Panel. The UK Caldicott Guardian Council (UKCGC) is a sub-group of the National Data Guardian Panel. Caldicott Guardians support the upholding of these principles at an organisational level. The principles, first introduced in 1997, are a set of good practice guidelines applied widely across the field of health and social care information governance to ensure that people’s data is kept safe and used appropriately. The National Data Guardian is responsible for maintaining the Caldicott Principles. You can find minutes of the NDG Panel on our publications page. There is more information about the backgrounds and experience of NDG Panel members in NDG Panel biographies ( PDF, 113 KB, 5 pages)
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Professor James Wilson (professor in the Department of Philosophy at University College London).Rob Shaw (managing director at Mercury Technology Ltd former deputy chief executive of NHS Digital).Eileen Phillips (freelance writer, communications consultant).Maisie McKenzie (patient and public involvement representative ).Rakesh Marwaha (former commissioning accountable officer).Mr Adrian Marchbank (consultant cardiothoracic surgeon, University Hospitals Plymouth NHS Trust).Andrew Hughes (Local Government Association’s director of health and wellbeing systems improvement).Dr Fiona Head (GP, public health consultant and chief medical officer at Cambridgeshire and Peterborough ICS).Dr Edward Dove (lecturer in health law and regulation at the Law School, University of Edinburgh).Dr Arjun Dhillon (GP, clinical director and Caldicott Guardian at NHS Digital, UKCGC chair).Professor Ian Craddock (professor in the Faculty of Engineering at the University of Bristol).John Carvel (freelance writer, formerly social affairs editor of The Guardian).Dr Chris Bunch (UKCGC vice chair and former consultant physician and Caldicott Guardian).Sam Bergin-Goncalves (patient and public involvement representative).Dr Joanne Bailey (former GP, tribunal member (Social Entitlements), clinical ethics tutor).The NDG also appoints an independent group of experts – the NDG Panel – to advise and support this work. The NDG wants to build trust in the use of data across health and social care and is guided by these 3 main principles:Įncouraging clinicians and other members of care teams to share information to enable joined-up care, better diagnosis and treatmentĮnsuring there are no surprises to the citizen about how their health and care data is being used and that they are given a choice about thisīuilding a dialogue with the public about how we all wish information to be used, to include a range of voices including commercial companies providing drugs and services to the NHS, researchers discovering new connections that transform treatments, and those managing the servicesĪlthough sponsored by the Department of Health and Social Care, the NDG operates independently, representing the interests of patients and the public.
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The NDG may also provide more informal advice about the processing of health and adult social care data in England.ĭr Nicola Byrne is the current National Data Guardian, having been appointed in March 2021.
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So will organisations such as private companies or charities which are delivering services for the NHS or publicly funded adult social care. Public bodies such as hospitals, GPs, care homes, planners and commissioners of services will have to take note of guidance that is relevant to them. The law placed the NDG role on a statutory footing and granted it the power to issue official guidance about the processing of health and adult social care data in England. In December 2018 the Health and Social Care (National Data Guardian) Act 2018 was passed. The NDG does so by offering advice, guidance and encouragement to the health and care system. The purpose of the role is to make sure that people’s information is kept safe and confidential, and that it is shared when appropriate to achieve better outcomes for patients. The National Data Guardian ( NDG) role was created in November 2014 to be an independent champion for patients and the public when it comes to matters of their confidential health and care information.